Multiple Sclerosis

Multiple Sclerosis

Working Nest Contents

1. Container of water- Daily staple.

2. Coffee- Daily staple.

3. Dark Chocolate- Daily staple.

4. Alexa- A device that allows me to listen to the weather, news, audio books, podcasts, and music.

5. Headphones- Allows me to use the computer using voice commands and talk to friends on Skype.

6. Bulletin Board.

7. List of 14 Audio Books- The Art of Stillness, by Pico Iyer

                                                     The Sound of a Wild Snail Eating, by Elizabeth Tova Bailey

                                                     Where Does it Hurt, by Johnathan Bush and Stephen Baker

                                                     Braving The Wilderness, by Brene Brown

                                                     I Thought It Was Just Me, by Brene Brown

                                                     Proust Was A Neuroscientist, by Jonah Lehrer

                                                     Creative Confidence: Unleashing the Creative Potential Within All of Us, by Tom Kelley and David Kelley

                                                     The Four, by Scott Galloway

                                                     The Five Second Rule, by Mel Robbins

                                                     Mrs. Fletcher, by Tom Perrotta

                                                    Making Friends With Your Mind, by Pema Chodron

                                                    Barking Up The Wrong Tree: The Surprising Science Behind Why Everything You Know About Success is Wrong,

                                                                                                                                                                                                                        by Eric Barker

                                                   The Subtle Art of Not Giving a Fuck: A Counter Intuitive Approach to Living A Good Life, by Mark Manson

8. 1 Note- Reminder on how to get Alexa to start reading audio books to me.

9. An embroidery of my brain scan.

10. Watercolor of my brain scan, by my artist assistant.

11. A message from someone also living with chronic illness, to keep me going.

12. Painting of pears- Still life of pears-The last painting I ever completed.

13. 1 Picture- A picture my son drew in 9th grade that I love.

14. Children's drawings- several pictures of my caregiver's children, as well as their pre-school drawings.

15. 2 Books-I can't read any more due to quadriplegia, but like to look at, Naked to the Bone, by Bettyann Kevles, an early mentor of mine.

and, The Human Brain, by  Rita Carter.


 

Elizabeth Jameson

Elizabeth Jameson is an artist specializing in the intersection of art and science. She transforms her brain scans to spark curiosity and conversation around what it means to live with an imperfect body.

 
 
 Elizabeth with her work at the Center for Brain Science, Harvard University.

Elizabeth with her work at the Center for Brain Science, Harvard University.

 
 

I am an artist who specializes in the intersection of art and science. I transform my brain scans into provocative images that challenge how society views the brain, disability and illness. Since my diagnosis of Multiple Sclerosis, I have continually undergone brain scans to track the progression of my disease. I began using art to reinterpret these images. My work invites people to discuss what it means to live in an imperfect body, and to stare directly at the beauty and complexity of the imperfect brain with curiosity.

As my disease has progressed, my practice has evolved. I now use storytelling, technology, and design to focus on expanding the narrative of illness. I am currently working on a project aimed to transform the untapped potential of time spent in waiting rooms of clinics. I am an ePatient scholar and advisor for Stanford Medicine X, and I publish articles about patient-centered healthcare, design, and the arts on Mind on Fire, my blog.

 

It has been such an honor and pleasure spending time with Elizabeth and her nest of belongings. I have enjoyed watching her exploring unfold through her items, and the books that she is listening to. For more of Elizabeth's ethereal and engaging work, as well as her, Transforming The Waiting Room Project, visit her website

 http://www.jamesonfineart.com/

 

Elizabeth's TEDX talk given at the Stanford Medicine X Conference.