Ehlers-Danlos Syndrome. Postural Orthostatic Tachycardia Syndrome. Gastroporesis. GERD. Irritable Bowel Syndrome. Lower Esophageal Sphincter Failure. Neuropathy. Toxic Neuropathy. Chronic Pain Syndrome. Thoracic Outlet Syndrome. Lordosis. Scoliosis. Occipital Migraines. TMJ. Chronic Bursitis. Degenerative Joint Disease. Hypersensitivity Histamine Disorder. Environmental Allergies.
1. Nighttime Medications- 9 Prescription medications. 4 Supplements. 3 Over the counter medications.
2. Bag of snacks-I keep a bag of snacks by my bed at all times. I never know when a dislocation of a joint can occur, or when I may need my pain meds in the middle of the night. After much trial and error I have found that when waking up in extreme pain, having to go to the kitchen to get a drink and snack, so I can take meds is a huge feat that is hard to accomplish, and sometimes impossible.
4. Essential Oils- Help with my anxiety and PTSD.
5. Body Cream/Lotions- The various lotions and creams are for several topical healing processes: for my joints and for my skin conditions- eczema and keratosis.
6. Hand Sanitizer- For sanitizing hands to tend to wound care.
7. First Aid Box-I am constantly dealing with wound care (most recently having feeding tube removed, and an open stoma that was healing, as well as having stitches in my upper chest from an access port, and three holes from my central line).
8. Thermometer- Constantly checking my temperature due to bad immune system, and having several episodes of overwhelming sepsis blood infections.
9. Nebulizer- For daily breathing treatments.
10. Spirometer- For breathing exercises to prevent relapse of pneumonia/chronic atelectasis.
11. Gum- Nausea deterrent for nighttime nausea from gastroporesis.
12. Mints- Nausea deterrent.
13. Nausea Meds- For nighttime nausea from gastroporesis.
14. Emesis bag-For nighttime vomiting.
15. Friendship bracelet- My best friend and my roommate, has been a rock through my illnesses. She does all the chores around the house when I am sick. She cares for me in many ways.
16. Ehlers-Danlos Awareness Bracelet- Ehlers-Danlos is a connective tissue disease.
17. Mace- For protection.
18. Knife-For protection- I keep these on my nightstand, or close by. This is more for personal comfort due to PTSD, and anxiety disorder from a history of sexual abuse.
20. Reaching device- To help me reach without bending, to prevent dislocation.
21. Remote for the adjustable bed.